Last updated: 5th of August 2026
Welcome to Sickle Synced CIC’s website (“SS”, “Sickle Synced “, “We”, “Our” or “Us”).
This agreement (“Agreement”, “Terms & Conditions”) should be read and understood by the individual (“you” or “your”) accessing the website to use our services (“Services”). If you disagree with any of our Terms & Conditions, you should discontinue accessing our website.
These Terms & Conditions govern how you use our website, the content and resources on our site, how you interact with us and others through our website and other related services.
We reserve the right to revise and change these Terms & Conditions. Please ensure you check them periodically for any changes.
1. Use of Services
Sickle Synced CIC’s website (“Website”) is provided for the purpose of:
- Raising awareness and educating individuals about sickle cell disorder
- Supporting community engagement
- Providing access to events organised by Sickle Synced CIC
- Sharing resources to support understanding of sickle cell
When submitting comments or contacting us via the Website, you should provide accurate and truthful information, including your name, email address, and any written content you submit.
The content available on this Website is provided for general informational purposes only and does not constitute medical advice, diagnosis, or treatment. It should not be used as a substitute for professional clinical advice from qualified healthcare professionals.
Unless otherwise stated, content published on this Website is created by non-clinical professionals.
We aim to keep the Website available and working properly; however, access may occasionally be interrupted due to maintenance, updates, or technical issues.
2. Acceptable use
When using our Website, you agree to use it in a respectful, lawful, and responsible manner.
You must not:
- Impersonate any person or misrepresent your identity when posting comments or contacting us
- Post false, misleading, or inaccurate information
- Engage in abusive, offensive, discriminatory, or harmful behaviour, including bullying or harassment of other users
- Share content that may cause harm, including misinformation relating to health or medical conditions
- Attempt to gain unauthorised access to the Website, its systems, or data
- Introduce viruses, malware, or any other malicious or harmful technology
- Disrupt, damage, or interfere with the proper functioning of the Website
Users are strongly discouraged from sharing sensitive personal or medical information in public areas of the Website, including comments. Any information shared is done at your own discretion.
We reserve the right to monitor, remove, or restrict any content that we consider to be inappropriate or in breach of these Terms & Conditions. Where necessary, we may also restrict or terminate your access to the Website and take further action if these terms are violated.
3. User-generated content
The Website allows users to submit comments and contact Sickle Synced CIC directly through our contact form.
Comments submitted through the Website may be publicly visible to other Website users. All comments will be reviewed before being published and made available publicly.
The following types of content are not permitted on the Website:
- Disrespectful, abusive, or offensive comments
- Medical misinformation or misleading health-related information
- Hate speech, discrimination, or content that promotes harm towards others
- Bullying, harassment, or threatening behaviour
- Spam, advertising, or promotional content without prior permission
- Personal information relating to another individual without their consent
- Confidential or private information that should not be publicly shared
Any content that breaches these Terms & Conditions may be removed and will not be published on the Website.
You are responsible for ensuring that any comments, messages, or information submitted to us are accurate and truthful. You are also responsible for ensuring that you have the necessary permission to share any information, including information relating to other individuals.
Sickle Synced CIC reserves the right to review, edit, remove, refuse to publish, or restrict access to any content submitted through the Website where we believe it breaches these Terms & Conditions or is unsuitable for our community.
If you submit a blog post, testimonial, personal story, or other content for publication, we will obtain your written consent before publishing it. You will retain ownership of your original content. Where you provide consent for publication, you grant Sickle Synced CIC permission to display and share that content on our Website and related platforms, such as our social media.
Sickle Synced CIC provides educational information and community support relating to sickle cell disorder. We are not a clinical service and cannot provide medical advice, diagnosis, or treatment. Please seek advice from a qualified healthcare professional for any clinical concerns or medical questions.
We encourage users to avoid sharing unnecessary personal or sensitive information, including medical information, through public areas of the Website. Any information shared publicly is done at your own discretion.
4.Intellectual Property
Unless otherwise stated, all content created and published by Sickle Synced CIC on this Website is owned by or licensed to Sickle Synced CIC. This includes, but is not limited to:
- Website text
- Blog articles
- Educational resources
- Graphics and designs
- Logos
- Branding materials
- Videos
- Event materials
All intellectual property rights relating to this content remain with Sickle Synced CIC unless otherwise stated.
You are permitted to share links to our Website, blog posts, and resources for educational and non-commercial purposes. Where you share or reference our content, you must provide appropriate credit to Sickle Synced CIC.
You must not:
- Copy, reproduce, modify, adapt, or republish our content and present it as your own
- Use our content for commercial purposes without prior written permission
- Use, reproduce, or alter our logo, branding, or other protected materials without written consent from Sickle Synced CIC
If you would like to use any Sickle Synced CIC content for commercial purposes, partnerships, training, publications, or other purposes outside general sharing, please contact us for written permission.
Where users submit their own content, including blog posts, testimonials, or personal stories, they retain ownership of their original content. By submitting content for publication, users provide Sickle Synced CIC with permission to publish and use that content where consent has been provided.
Any third-party resources, services, organisations, or websites referenced on this Website remain the property of their respective owners.
Where we provide information about third-party resources, we aim to provide a brief overview of the service and direct users to the relevant third-party website for further information.
Sickle Synced CIC does not own, control, or take responsibility for the content, services, policies, or practices of third-party websites. Users should review the terms, privacy policies, and information provided by the relevant third party before using their services.
5. Disclaimer
We are not a clinical or medical service. Please seek advice from a qualified healthcare professional.
The information provided on this Website is for general educational purposes about sickle cell disorder. It should not be used as a substitute for professional medical advice.
While we aim to keep information accurate and up to date, we cannot guarantee that it will always be complete, current, or free from errors. If you identify any information that you believe requires updating or correction, please contact us.
We encourage users to carry out further research and not rely solely on the information provided on this Website.
Our Website may occasionally be unavailable or experience technical issues. We do not guarantee that access to the Website will always be uninterrupted.
Where this Website provides links to third-party websites or resources, Sickle Synced CIC is not responsible for the content, accuracy, availability, or practices of those third-party websites. You should review the third party’s terms and privacy policies before using their services.
6. Limitation of Liability
Sickle Synced CIC aims to provide accurate and helpful information through this Website. However, we are not responsible for any loss or damage that occurs because of how you use the Website or rely on information provided.
This includes:
- Relying on information provided on the Website
- The Website being unavailable or experiencing technical issues
- Any indirect loss or damage caused by using the Website
Sickle Synced CIC is not responsible for any decisions you make or actions you take based on health-related information provided on this Website. Please seek advice from a qualified healthcare professional for any medical concerns.
We are not responsible for any loss, damage, or issues that may occur when you access third-party websites through links provided on our Website. You should review their own terms and conditions and privacy policies before using their services.
These Terms & Conditions do not remove any rights or responsibilities that we are legally required to keep under UK law.
7. Changes to these terms
Sickle Synced CIC may update these Terms & Conditions when necessary.
Any changes will take effect once the updated Terms & Conditions are published on the Website.
You are encouraged to review these Terms & Conditions periodically to stay informed of any changes.
The date of the latest update will be displayed at the beginning of these Terms & Conditions.
8. Governing Law
These Terms & Conditions are governed by the laws of England and Wales.
If there is a disagreement relating to these Terms & Conditions, we will aim to resolve it directly with you first. If it cannot be resolved, it may be resolved through the courts of England and Wales.
9. Contact Us
If you have any questions, concerns, or need further information regarding these Terms & Conditions or the Website, please contact us using the get in touch form available on our Website.
